Accelerating Access to Critical Therapies for ALS Act This bill establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities for scientific research utilizing data from expanded access to investigational ALS treatments for individuals who are not otherwise eligible for clinical trials. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other rare neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases. The Government Accountability Office must report to Congress about the grants provided under this bill, including an analysis of the impact of such grants on research and development of treatments for ALS.
Rep. Ronny Jackson
Sponsored bills
Providing Our Law Enforcement with Adequate Resources for a Response Act or the POLAR Response Act This bill includes a polar vortex as a major disaster for which a declaration of a state of emergency can be made and provides a definition for a disaster-related emergency for purposes of the Department of Defense (DOD) excess personal property program (therefore authorizing DOD to transfer certain personal property for a polar vortex emergency).
Protecting Our Democracy by Preventing Foreign Citizens from Voting Act This bill prohibits federal funds from being made available to state or local governments that allow noncitizens to vote in federal, state, or local elections.
Stop Federal Vaccine Mandates for Employees Act This bill prohibits the Occupational Safety and Health Administration from issuing any emergency temporary standard that requires an employee to receive a drug, vaccine, or other biological product.
This resolution recognizes the importance of Christmas symbols and traditions. The resolution (1) disapproves of attempts to ban references to Christmas, and (2) supports the use of these symbols and traditions by those who celebrate Christmas.
Continuing Robust and Uninhibited Drilling and Exporting Act or the CRUDE Act This bill limits the President's authority to restrict the export of crude oil from the United States. Currently, the President may restrict the export of oil for up to a year if the President declares a national emergency; the restrictions apply to countries, persons, or organizations for reasons of national security; or the Department of Commerce finds and reports to the President that the export of crude oil has caused sustained material oil supply shortages or sustained oil prices significantly above world market levels and those shortages or price increases have caused or are likely to cause sustained material adverse employment effects. However, this bill only allows the President to make such restrictions if the restrictions apply to countries, persons, or organizations for reasons of national security; or the Department of Defense, the Department of Energy, and Commerce jointly make those findings and report them to the President and Congress.
Preserving Rights Of Tenants by Ensuring Compliance To the Second Amendment Act or the PROTECT the Second Amendment Act This bill establishes a right for a resident of covered federally assisted rental housing to lawfully possess a firearm within the residential dwelling unit occupied by the resident and any common area of the federally assisted rental housing in which the resident resides in the course of entering or exiting the rental housing.
Border Agents Stay Employed Act or the BASE Act This bill prohibits using federal funds to require any U.S. Customs and Border Protection officer or employee to receive a COVID-19 vaccine.
This resolution states that the Chinese government is responsible for ongoing abuses against the Uyghurs and other ethnic and religious minority groups and that these abuses constitute genocide and crimes against humanity. The resolution also condemns such genocide and crimes against humanity and calls on the President to take certain actions to put an end to these atrocities.
This bill prohibits the Department of Defense (DOD) from taking specified actions against a member of the National Guard based on whether the member has received a COVID-19 vaccine. Specifically, DOD may not (1) involuntarily discharge or discipline the member, (2) withhold pay or benefits from the member, or (3) prohibit the member from participating in training or using equipment.