Rep. Bill Pascrell, Jr.

Maddy summaryHRES 1330 is a non-binding resolution supporting Alzheimer’s and Brain Awareness Month in June. It recognizes the significant impact of Alzheimer’s disease on millions of Americans, including high prevalence among women and racial/ethnic minorities. The resolution encourages the public to educate themselves about Alzheimer’s, advocate for research and support services, and offer assistance to affected individuals, families, and caregivers. It does not create new programs, funding, or legal obligations. The resolution is directed at raising public awareness and fostering community support during the designated month.

Maddy summaryHR 8859, the Deafblind DATA Act, requires the Census Bureau to create and publish a new annual table starting in 2026 showing the number of people in the U.S. who reported both hearing and vision loss in the American Community Survey. This table will display data by state, including sex, race, age, and economic factors like employment and income, without revealing personal details. The bill directly addresses the lack of a centralized count for deafblind individuals, who currently aren't accurately represented in census data. By cross-referencing existing survey responses, the Act aims to provide a clearer national picture to better understand and serve this population's needs.

Maddy summaryThis bill creates a federal framework for "extreme risk protection orders" (ERPOs) that temporarily remove firearms from individuals who pose a risk of harming themselves or others. Family members or law enforcement officers can petition a federal court for a temporary order (up to 14 days) based on probable cause, followed by a hearing within 72 hours to determine if a longer-term order (up to 180 days) is warranted. The bill requires clear and convincing evidence of risk at the hearing and mandates respondents to surrender firearms to law enforcement within 48 hours. It also includes provisions for reporting, training law enforcement on ERPOs, and a federal grant program to support state ERPO implementation, without preempting state laws.

Maddy summaryThis resolution recognizes June 19, 2024, as Juneteenth Independence Day, acknowledging its historical significance as the anniversary of the end of slavery in the U.S. (specifically referencing Union soldiers' announcement in Galveston, Texas, on June 19, 1865). It does not create new policy but formally encourages all Americans to observe the day through ceremonies and educational activities. The resolution emphasizes Juneteenth's role in honoring African American freedom and its importance to U.S. history and cultural heritage. It follows the 2022 law that established Juneteenth as a federal holiday, focusing solely on symbolic recognition and annual observance.

Maddy summaryHRES 1304 is a symbolic resolution designating June 19, 2024, as "World Sickle Cell Awareness Day" to raise public awareness about sickle cell disease (SCD) globally. It does not create new laws but urges increased focus on SCD research, early detection screenings, equitable access to treatments, and preventative care programs for those affected. The resolution specifically calls on the Department of Health and Human Services to develop global policies supporting newborn screening and treatment access, and recommends forming an interagency group to address barriers in Medicare/Medicaid for SCD therapies. It directly affects public awareness efforts and healthcare policy discussions for the estimated 100,000 SCD patients in the U.S. and millions worldwide, particularly in communities disproportionately impacted by the disease.

Maddy summaryHR 537 authorizes a Congressional Gold Medal to honor 60 diplomats who saved Jewish lives during the Holocaust by issuing visas and passports against their governments' orders, risking expulsion and personal danger. The medal will be presented to the next of kin of these diplomats, alongside representatives from their home countries, and permanently displayed at the United States Holocaust Memorial Museum. The bill also permits the sale of bronze duplicates to cover production costs, with proceeds going to the U.S. Mint. This legislation recognizes the diplomats' humanitarian actions without creating new government programs or altering existing laws.

Maddy summaryThis resolution (HRES 1271) is a symbolic gesture expressing the House's support for designating June 7, 2024, as "National Gun Violence Awareness Day" and June 2024 as "National Gun Violence Awareness Month." It does not create new laws or policies but urges the public to wear orange, raise awareness about gun violence, and focus on community safety during summer months when such incidents often increase. The resolution references statistics on gun-related deaths and honors victims like Hadiya Pendleton, who was killed in 2013. It directly affects the public by calling on individuals and communities to participate in awareness activities. This is a non-binding, commemorative measure with no direct legal impact on legislation or regulations.

Maddy summaryHRES 1257 is a symbolic resolution designating May as "National Huntington's Disease Awareness Month" to increase public understanding of the disease. It recognizes Huntington's Disease as a fatal genetic disorder affecting approximately 41,000 symptomatic Americans and over 200,000 at risk, which causes progressive physical, mental, and emotional decline typically in adulthood. The resolution urges the House to support this designation and encourages the President to issue a proclamation. This is a non-binding awareness measure with no new funding or policy changes, aligning with the Huntington’s Disease Society of America’s existing May observance.

Maddy summaryHRES 1260 is a non-binding resolution expressing the U.S. House of Representatives' support for designating May 2024 as "Progressive Supranuclear Palsy Awareness Month." It recognizes progressive supranuclear palsy (PSP) as a rare neurodegenerative disease affecting approximately 30,000 Americans, with no known cure and symptoms including cognitive decline, balance issues, and speech difficulties. The resolution specifically supports raising public awareness, encourages research for better treatments and a cure, and commends efforts by patients, families, and organizations working to improve PSP care. As a symbolic gesture, it does not create new laws or allocate funding but aims to increase visibility for this under-recognized condition.

Maddy summaryThe Alzheimer’s Accountability and Investment Act (HR 620) requires the National Institutes of Health (NIH) Director to annually submit a budget estimate for Alzheimer’s-related initiatives - including personnel needs - directly to the President for review and then to Congress. This budget must be prepared after public comment and submitted without changes by the Secretary of Health and Human Services or the Advisory Council. The bill directly affects the NIH’s budget reporting process for Alzheimer’s research and programs, mandating transparency in how funds are allocated. It does not change funding levels but establishes a specific annual reporting mechanism to improve accountability.