Reorganize and Fund Rare Disease Advisory Council.
Maddy summaryHB 935 reorganizes the Advisory Council on Rare Diseases in North Carolina by moving it from the University of North Carolina at Chapel Hill to the Department of Health and Human Services. The bill establishes a 19-member council composed of physicians, researchers, patient advocates, industry representatives, and other stakeholders to advise state leaders on rare disease research, diagnosis, treatment, and education. Key provisions include setting specific term lengths for members, providing administrative support and funding for the council's operations, and requiring annual reports on council activities and recommendations.
In committee Jun 4, 2024
1 co-sponsor