Reorganize and Fund Rare Disease Advisory Council.
HB 935 reorganizes the Advisory Council on Rare Diseases in North Carolina by moving it from the University of North Carolina at Chapel Hill to the Department of Health and Human Services. The bill establishes a 19-member council composed of physicians, researchers, patient advocates, industry representatives, and other stakeholders to advise state leaders on rare disease research, diagnosis, treatment, and education. Key provisions include setting specific term lengths for members, providing administrative support and funding for the council's operations, and requiring annual reports on council activities and recommendations.
Bill status
in committee
1 of 4 stages cleared
Introduction
Apr 2024
Committee Review
Floor Vote
Governor
Introduced Apr 30, 2024
Last action Jun 4, 2024
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
5
Key actions
1
Committee
3
Jun 4, 2024
Committee
Re-ref Com On Appropriations
lower
Jun 4, 2024
Lower · Passed
Reptd Fav
lower
May 1, 2024
Committee
Ref to the Com on Health, if favorable, Appropriations, if favorable, Rules, Calendar, and Operations of the House
lower
Apr 30, 2024
Introduced
Filed
lower
1 primary · 23 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Becky Carney
DDemocratic
Co
Bill Ward
RRepublican
Co
Carla Cunningham
IIndependent
Co
Cynthia Ball
DDemocratic
Co
Deb Butler
DDemocratic
Co
Diane Wheatley
RRepublican
Co
Donny Lambeth
RRepublican
Co
Frank Sossamon
RRepublican
Co
Gloristine Brown
DDemocratic
Co
James Roberson
DDemocratic
Co
Joe John
DDemocratic
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