HB 935 North Carolina House · 2023-2024 Session

Reorganize and Fund Rare Disease Advisory Council.

HB 935 reorganizes the Advisory Council on Rare Diseases in North Carolina by moving it from the University of North Carolina at Chapel Hill to the Department of Health and Human Services. The bill establishes a 19-member council composed of physicians, researchers, patient advocates, industry representatives, and other stakeholders to advise state leaders on rare disease research, diagnosis, treatment, and education. Key provisions include setting specific term lengths for members, providing administrative support and funding for the council's operations, and requiring annual reports on council activities and recommendations.
Bill status in committee 1 of 4 stages cleared
Introduction
Apr 2024
Committee Review
Floor Vote
Governor
Introduced Apr 30, 2024 Last action Jun 4, 2024
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Full legislative history

Actions timeline

Total actions
5
Key actions
1
Committee
3
Jun 4, 2024
Committee
Re-ref Com On Appropriations
lower
Jun 4, 2024
Lower · Passed
Reptd Fav
lower
May 1, 2024
Committee
Ref to the Com on Health, if favorable, Appropriations, if favorable, Rules, Calendar, and Operations of the House
lower
Apr 30, 2024
Introduced
Filed
lower
1 primary · 23 co-sponsors

Sponsors