Maddy summaryThis non-binding resolution designates April 5, 2024, as "Barth Syndrome Awareness Day" to raise public awareness about a rare genetic disorder primarily affecting males. It formally supports efforts to improve diagnosis, advance research, and develop treatments for Barth syndrome, which has fewer than 150 diagnosed cases in the U.S. and causes life-threatening heart, muscle, and immune complications. The resolution does not create new laws or funding but recognizes the need for better access to specialized care and regulatory pathways for ultrarare diseases. This symbolic action aims to benefit the small patient community and support the Barth Syndrome Foundation's awareness initiatives.
Rep. Doris O. Matsui
Sponsored bills
Maddy summaryThe RARE Act amends the Federal Food, Drug, and Cosmetic Act to narrow the scope of marketing exclusivity for "orphan drugs" (medications for rare diseases). It changes the rule so that exclusivity applies only to the specific *approved use or indication* of a drug, not the entire rare disease or condition. This means drug companies lose exclusivity for new uses of an already-approved drug within the same rare disease, potentially allowing competitors to develop follow-on treatments faster. The change applies to all orphan-designated drugs, regardless of when they were approved or designated.
Maddy summaryHRES 966 is a symbolic resolution condemning alleged sexual violence committed by Hamas during its October 7, 2023, attack on Israel. It specifically references eyewitness accounts, forensic evidence, and Hamas fighters' admissions of ordering gang rape, sexual mutilation, and assault against Israeli civilians. The resolution calls for international condemnation of such acts as weapons of war, urges nations to criminalize sexual violence, and supports investigations into Hamas' actions. As a non-binding resolution, it does not create new laws or directly affect any individuals but formally expresses the House's position on the issue.
Maddy summaryThis resolution (HRES 1005) is a non-binding expression of the House's opinion, not a law. It states that local print and digital journalism is vital for government transparency, local governance, and preventing political corruption, as these news sources are disappearing due to declining subscriptions, corporate buyouts, and reduced community trust. The resolution calls for federal, state, and local governments to make "all possible efforts" to sustain local news operations and urges Congress to collaborate with news outlets and stakeholders to ensure their continued viability. It directly addresses the growing crisis in local news coverage affecting communities nationwide.
Saving Local News Act This bill includes as a tax-exempt 501(c)(3) charitable organization purpose the publication (including electronic publication) of written news articles. In the case of an organization that is tax-exempt due to the publication of written news articles, the term unrelated business taxable incom e does not include any amount attributable to payments for advertisements in news publications.
Maddy summaryHRES 1002 is a symbolic House resolution recognizing the cultural and historical significance of Lunar New Year (celebrated as the Year of the Dragon in 2024). It acknowledges the holiday's 4,000-year history in China, its celebration across Asia (including Seollal and Tết), and its significance to Asian Americans and others in the U.S. The resolution expresses respect for those observing the holiday and wishes them a happy new year, but it does not create new laws, policies, or funding. As a ceremonial resolution, it has no direct effect on legislation or constituents.
Maddy summaryHR 7112, the Stop Scams and Spam Act, requires the Federal Communications Commission (FCC) to create a tracking system for the top 100 illegal or suspected illegal robocall campaigns within one year of the law's enactment. The FCC must then publish monthly public reports on these campaigns via its website, detailing activity from the previous month. This bill directly affects consumers by increasing transparency about widespread scam call operations, as the reports will identify recurring fraudulent campaigns targeting phone users. The law defines "robocall" broadly to include automated calls or texts using dialing systems or prerecorded voices, excluding those requiring significant human involvement.
Maddy summaryHR 7116, the Do Not Disturb Act, updates federal rules to combat robocalls and deceptive telemarketing. The bill requires clear disclosure when AI is used to mimic human voices in calls or messages, enhances penalties for AI impersonation scams, and mandates free robocall-blocking services for consumers. It also creates a tracking system for the top 100 illegal robocall campaigns and expands telemarketing regulations to include text messages, applying to telecommunications providers, VoIP services, and businesses making automated calls or sending text messages.
Maddy summaryHR 7127, the FAIR Act, establishes pay adjustments for federal employees in 2025. It increases base pay by 4% for most federal workers under statutory pay systems and for "prevailing rate" employees (like those in specific geographic areas), while raising locality pay rates by 3.4%. The bill directly affects all federal employees receiving pay under these systems, as it modifies their 2025 salary calculations. These changes are based on statutory formulas under Title 5 of the U.S. Code, with no new policy mechanisms beyond the specified percentage increases. The adjustments apply to pay rates in effect as of the end of fiscal year 2024.
Maddy summaryThe SWIMS Act of 2024 bans the captivity of orcas, beluga whales, false killer whales, and pilot whales for public display in the United States. It prohibits exporting, importing, or taking these animals for display - except for relocation to a sanctuary meeting specific welfare standards or release into the wild. The bill also makes it illegal to breed these species for public display. This directly affects marine parks and aquariums that currently display these animals, preventing them from acquiring new animals for exhibits or breeding them for that purpose.