Maddy summaryThis bill establishes the INCLUDE Project at the National Institutes of Health (NIH) to advance research on Down syndrome and related health conditions. It requires NIH to fund high-risk studies on trisomy 21, support inclusive clinical trials for people with Down syndrome across all ages, and investigate co-occurring conditions like Alzheimer’s disease and autoimmunity. The law mandates NIH coordination across its institutes, consultation with patient advocates, and biennial reports to Congress detailing funded research and its real-world applications. The project directly affects individuals with Down syndrome, their families, and medical researchers, aiming to improve diagnosis, treatment, and quality of life through targeted scientific efforts.
Rep. Paul Tonko
Sponsored bills
Maddy summaryHR 2004, titled "Tyler’s Law," requires the Secretary of Health and Human Services to study how often hospital emergency departments test for fentanyl during overdose cases (beyond standard drug tests), including associated costs, patient benefits/risks, and impacts on privacy and patient-physician relationships. The study must be completed within one year of the bill's enactment. Based on the study results, the Secretary must issue guidance within six months on whether emergency departments should routinely test for fentanyl, how to inform clinicians about test contents, and how such testing may affect future overdose risks and health outcomes. This bill directly affects hospital emergency departments and patients experiencing overdoses by shaping future testing protocols.
Maddy summaryThe Modernizing Opioid Treatment Access Act 2.0 of 2026 allows specific addiction medicine specialists to prescribe methadone for opioid use disorder to be dispensed directly through pharmacies, rather than requiring patients to attend traditional treatment clinics. This change permits these qualified doctors to use telemedicine for patient care and requires that the methadone be in a liquid or dispersible tablet form. While the bill maintains existing clinic-based treatment options, it streamlines access by removing the need for pharmacies to obtain separate registrations to dispense the medication. The law also mandates that patients sign informed consent forms explaining how privacy rules differ between clinic and pharmacy settings, and it requires the Drug Enforcement Administration to report on the program's progress to Congress every year.
Maddy summaryOrlin's Law requires immigration officials to identify detained parents and prioritize family unity by limiting detention when possible. The bill mandates that parents be allowed to make free calls and visits with their children, participate in family court proceedings, and access necessary documents to care for their dependents. It also establishes a new office within U.S. Immigration and Customs Enforcement to coordinate these protections and provides for community-based alternatives to detention. Additionally, the law creates a presumption that parental rights remain intact even if a child is separated from a detained parent and outlines specific steps to facilitate reunification upon removal.
Maddy summaryThe Stop CHEATERS Act directs the Internal Revenue Service to increase its enforcement efforts against high-income individuals and large corporations by allocating billions of dollars in additional funding for tax audits, criminal investigations, and taxpayer services through fiscal year 2031. A significant portion of this funding is designated for modernizing the IRS's technology and business systems to improve its ability to detect fraud and noncompliance. The legislation also requires the IRS Commissioner to submit regular reports to Congress detailing plans to shift auditing resources toward wealthy taxpayers and analyzing how much unpaid tax is owed by different income groups.
Maddy summaryThe Drug Deal Disclosure Act requires the Department of Health and Human Services to publicly release records of specific agreements between the federal government and major drug manufacturers starting in 2025. These agreements must include provisions such as offering lower drug prices based on international rates, providing discounts through government platforms like TrumpRx, or receiving special exemptions from import duties and regulatory reviews. While the bill mandates that most documents be made available in a searchable format, it allows the government to withhold only specific confidential pricing details if legally required by foreign laws or court orders, provided a justification is published. Additionally, the law directs the Congressional Budget Office and the Government Accountability Office to analyze the economic and budgetary impacts of these deals, including effects on Medicare, Medicaid, and drug competition.
Maddy summaryThis bill requires Medicare Advantage plans to implement electronic pre-approval systems for medical services by 2028 and meet transparency reporting standards starting in 2027. Plans must publicly report data on approval/denial rates, appeal outcomes, response times, and technology use for pre-approval requests, including details on how denials relate to clinical criteria. It establishes a 24-hour response timeframe for certain requests and mandates annual reviews of pre-approval requirements based on data and input from seniors and providers. The law directly affects Medicare Advantage plans, seniors enrolled in these plans, and healthcare providers who submit pre-approval requests. These changes aim to make the pre-approval process faster, more transparent, and more accountable for seniors seeking covered medical services.
Maddy summaryThe High Court Gift Ban Act prohibits federal judicial officers from accepting gifts from sources likely to appear before them, unless the gift is under $50, the total annual value from that source remains $100 or less, or it falls under specific exceptions like gifts from relatives or public events. The law defines a "gift" broadly to include items, services, and reimbursements, while allowing exceptions for personal hospitality within IRS limits and certain professional benefits available to the general public. Enforcement mechanisms include referrals to the Attorney General for violations, which can result in civil or criminal penalties similar to those for other federal ethics breaches. The bill requires the Supreme Court and the Judicial Conference to create implementing regulations within 180 days of enactment to ensure compliance.
Maddy summaryThis resolution expresses support for designating July 10th as Journeyman Lineworkers Recognition Day to honor the workers who maintain the nation's electrical grid. The bill specifically recognizes the dangerous conditions these employees face, such as working at heights near live power lines and responding to disasters like hurricanes and wildfires. It also commemorates Henry Miller, the first president of the International Brotherhood of Electrical Workers, who died on July 10, 1896, while performing his duties. Ultimately, the measure encourages the public to observe this day with reflection on the contributions of lineworkers.
Maddy summaryThis bill extends federal funding for school-based health centers through fiscal year 2031. It directly affects schools and community organizations that operate health centers providing medical care to students. The key provision increases the annual grant amount to $55 million per year for the five-year period. This change ensures continued financial support for programs that offer healthcare services directly within educational settings. The legislation does not alter eligibility requirements or program structure, only the funding timeline and amount.