Rep. Frank J. Mrvan

Give Kids a Chance Act of 2025 This bill expands the Food and Drug Administration’s (FDA’s) authority with respect to research on rare pediatric diseases, including by permitting the FDA to take enforcement action against drug sponsors that fail to satisfy pediatric study requirements and by reauthorizing programs that support pediatric research.  Specifically, the bill modifies requirements relating to molecularly targeted pediatric cancer investigations to permit research on new drugs in combination with active ingredients that have already been approved, provided certain conditions are met; permits the FDA to take enforcement action against drug sponsors that fail to comply with pediatric study requirements, if such sponsors demonstrated a lack of due diligence in satisfying the requirement; renews the FDA’s authority to award priority review vouchers to sponsors of new products intended to treat rare pediatric diseases through September 30, 2029; and reauthorizes through FY2027 certain funding for the National Institutes of Health to support priority pediatric research.  The bill also provides statutory authority for the FDA’s interpretation of the orphan drug exclusivity period. The bill specifies, consistent with FDA regulations, that the seven-year market exclusivity period for drugs for rare diseases or conditions (i.e., orphan drugs) prohibits the approval of the same drug for the same approved use or indication with respect to the disease or condition. (In Catalyst Pharmaceuticals, Inc. v. Becerra , a court rejected the FDA’s interpretation and held that orphan drug exclusivity extends to all uses or indications for the disease or condition.)

Maddy summaryThis bill establishes a federal program to help low-income households pay for drinking water and wastewater services. It provides $500 million annually (2026-2030) in grants to states and tribes that already administer energy assistance programs, allowing them to cover past-due bills or other costs for households meeting specific income criteria (e.g., receiving certain federal benefits or earning ≤150% of the poverty level). The program prohibits using these funds to replace existing assistance and requires technical help to streamline eligibility. It directly affects low-income households in participating states and tribes, particularly those facing water affordability challenges.

Maddy summaryThe Electricity Transmission Scorecard Act (HR 6176) requires electricity transmission owners and regional grid operators to publicly report on their performance using standardized metrics. It mandates biannual reports from transmission owners (TIAPS) and annual reports from regional grid operators (RIAPS) covering affordability, investment effectiveness, system reliability, interconnection fairness, and other key performance indicators. The bill establishes a framework for transparent, comparable data that would be publicly accessible through a government portal, allowing ratepayers and stakeholders to evaluate transmission service quality. This applies to all entities operating transmission facilities, including those not previously subject to FERC reporting requirements, aiming to improve transparency and accountability in electricity transmission.

Maddy summaryThe Revitalize Our Neighborhoods Act of 2025 creates a competitive grant program administered by the Department of Housing and Urban Development (HUD) to eliminate blight and revitalize neighborhoods. It provides funding specifically for states, local governments, or multi-jurisdictional entities to carry out activities like demolishing deteriorated structures, boarding vacant properties, renovating abandoned buildings, and constructing affordable housing - all limited to low-income communities. Recipients must contribute at least 15% in matching funds (from federal programs, local sources, or property sales) and submit detailed 5-year plans for how the funds will be used. The bill prohibits using funds to acquire occupied homes and requires annual reports on project outcomes, geographic distribution, and populations assisted.

Maddy summaryHR 6181, the John Lewis Every Child Deserves a Family Act, prohibits child welfare agencies receiving federal funds from discriminating against children, youth, or prospective foster/adoptive parents based on religion, sex (including sexual orientation and gender identity), or marital status. It directly affects LGBTQ youth in foster care - overrepresented at 30% of the system - who face higher risks of trauma, group home placements, and suicide attempts compared to non-LGBTQ peers. Key provisions require agencies to collect data on sexual orientation and gender identity, establish a National Resource Center for LGBTQ youth support, provide cultural competency training, and eliminate discriminatory practices. The law aims to improve safety, permanency, and placement stability by expanding access to family-based care and ensuring equitable services for all children in the system.

Maddy summaryThis bill amends federal law to expand appeal rights for certain postal employees to the Merit Systems Protection Board (MSPB). It specifically applies to postal workers in supervisory, professional, technical, clerical, administrative, or managerial roles who are not represented by a union under Section 1203 of federal labor law. The key change clarifies that these employees can now directly appeal personnel decisions (like discipline or termination) to the MSPB, rather than relying solely on internal postal processes. This modifies eligibility criteria for MSPB appeals under Title 39 of the U.S. Code.

Maddy summaryThis bill establishes fairer pay and retirement benefits for federal firefighters. It requires that overtime hours worked during a firefighter's regular schedule be included in retirement calculations, improving retirement payouts. The bill also sets a maximum 60-hour regular workweek for federal firefighters, to be defined by the Office of Personnel Management within one year. These changes directly affect federal firefighters by addressing pay disparities with municipal firefighters and enhancing recruitment and retention.

Maddy summaryThis bill would require Medicare to cover early detection screening tests for Alzheimer's disease and related dementias starting January 1, 2028. It defines eligible tests as FDA-cleared genomic blood tests, blood product analyses, or equivalent medical imaging methods (like protein expression or whole genome sequencing) that detect pre-symptomatic or early-stage conditions. Medicare beneficiaries would receive this coverage without cost-sharing for these specific screenings. The bill amends Medicare coverage rules to explicitly include these tests under Section 1861(nnn) of the Social Security Act.

Maddy summaryHR 6137 would create a new separate job code for "direct support professionals" (DSPs) within the federal Standard Occupational Classification system. This change aims to better recognize DSPs - who provide daily support for people with intellectual and developmental disabilities (like helping with daily living, community participation, and goal-setting) - as distinct from other roles like home health aides. The bill requires the Office of Management and Budget to consider this revision during the next system update, without authorizing new funding. It addresses data gaps caused by high turnover rates (39% nationally) in DSP hiring and retention.

Maddy summaryHR 6056, the International Human Rights Defense Act of 2025, establishes a permanent Special Envoy at the State Department to lead U.S. foreign policy efforts addressing discrimination and violence against LGBTQI+ people globally. The bill requires the U.S. government to develop and update a biannual global strategy to prevent criminalization and violence against LGBTQI+ individuals, mandate detailed reporting on such abuses in annual country reports, and ensure all U.S. foreign assistance programs include inclusive nondiscrimination policies. This legislation directly affects U.S. foreign policy implementation, federal agencies receiving funding, and LGBTQI+ communities facing persecution worldwide. The bill aims to coordinate U.S. government efforts across departments and with international partners to advance LGBTQI+ rights globally through concrete policy mechanisms.