Maddy summaryThis House resolution (HRES 1036) expresses the U.S. House of Representatives' support for designating February 29, 2024, as "Rare Disease Day." It acknowledges the global observance of Rare Disease Day - first recognized in the U.S. in 2009 - and highlights the challenges faced by the over 25 million Americans living with rare diseases (affecting fewer than 200,000 people in the U.S. each). The resolution recognizes the importance of improving awareness, encouraging early diagnosis, and supporting efforts to develop treatments for rare diseases. It is a symbolic gesture with no new policies or funding, aligning with the annual global observance of Rare Disease Day.
Rep. Richard Hudson
Sponsored bills
Maddy summaryThis bill reauthorizes the Congressional Award Program, which recognizes young Americans for achievements in community service, personal development, and expeditions. It extends the program's expiration date from October 1, 2024, to October 1, 2029, ensuring continued operation. The bill also makes minor editorial changes to the description of award medals (removing outdated phrasing about metal composition) but does not alter program eligibility or requirements. The Congressional Award Program itself is directly affected, as this reauthorization prevents its automatic termination. No new policy changes or beneficiary impacts are introduced.
Maddy summaryHR 3277, the Energy Emergency Leadership Act, reassigns specific energy emergency and security responsibilities to an Assistant Secretary within the Department of Energy. It adds new duties for the Assistant Secretary to handle infrastructure protection, cybersecurity, supply chain issues, and emergency response planning. The bill also authorizes the Department to provide technical assistance to states, local governments, or energy companies upon request when facing energy security threats. This is a procedural bill clarifying existing agency roles, not creating new programs or funding.
Maddy summaryHR 7494, the Protect America’s Lands Act, prohibits national securities exchanges from processing transactions involving stocks issued by companies primarily managing land for conservation. It defines "natural asset companies" as those holding rights to ecological performance of specific land areas, with their core purpose being to conserve, restore, or sustainably manage natural assets without causing material harm. The bill directly affects securities exchanges and these specific companies by banning exchange-based trading of their securities. This is a regulatory change to the Securities Exchange Act of 1934, focusing on financial market rules rather than direct land management policies.
Maddy summaryHR 7361, the Flowers for Fallen Heroes Act of 2024, requires the American Battle Monuments Commission to establish a low-cost program allowing the public to order flowers for military gravesites at Commission-managed cemeteries. The bill mandates the Commission to partner with third-party florists (without excess fees) and create a user-friendly website and phone system for ordering by one year after enactment. It also authorizes credit card and electronic payment processing for these orders, with customers responsible for any third-party processing fees, and requires annual reports to Congress detailing program implementation, including order data and florist engagement. This bill directly affects the public seeking to honor fallen service members and the Commission’s operations at 25 overseas military cemeteries.
Maddy summaryHR 7450, the Protecting Privacy in Purchases Act, prohibits payment card networks and covered entities (like payment processors) from requiring or assigning merchant category codes that specifically identify firearms retailers as different from general stores or sporting goods retailers. This directly affects firearms retailers and payment networks by preventing them from using business classification codes that could flag firearm sales. The bill establishes an enforcement process where the Attorney General investigates complaints, issues remediation notices, and can seek court injunctions for non-compliance, while preempting state or local laws on this issue. It does not create private lawsuits for individuals.
Maddy summaryHR 7384, the Creating Hope Reauthorization Act of 2024, extends the deadline for issuing priority review vouchers to pharmaceutical companies developing treatments for rare pediatric diseases. The bill amends the Federal Food, Drug, and Cosmetic Act to push the program’s expiration from 2024 to 2028 and adjusts another related deadline to 2030. This directly affects drug manufacturers seeking faster FDA review for new treatments targeting rare childhood illnesses. The extension ensures continued incentives for developing these critical therapies without altering the core voucher mechanism.
Maddy summaryThe RARE Act amends the Federal Food, Drug, and Cosmetic Act to narrow the scope of marketing exclusivity for "orphan drugs" (medications for rare diseases). It changes the rule so that exclusivity applies only to the specific *approved use or indication* of a drug, not the entire rare disease or condition. This means drug companies lose exclusivity for new uses of an already-approved drug within the same rare disease, potentially allowing competitors to develop follow-on treatments faster. The change applies to all orphan-designated drugs, regardless of when they were approved or designated.
Maddy summaryHR 7176, the "Unlocking our Domestic LNG Potential Act of 2024," streamlines approval processes for U.S. liquefied natural gas (LNG) export terminals. It grants the Federal Energy Regulatory Commission (FERC) exclusive authority to approve or deny LNG export facility projects, requiring FERC to deem such exports "consistent with the public interest" unless specific legal exceptions apply. The bill explicitly preserves the President’s authority to block LNG exports under sanctions laws targeting countries designated as state sponsors of terrorism. This directly affects LNG companies seeking export permits and FERC’s regulatory role, without altering existing environmental or safety regulations.
Maddy summaryHJRES 114 is a joint resolution seeking congressional disapproval of a Federal Highway Administration (FHWA) rule that would have required tracking greenhouse gas emissions as part of assessing performance for the National Highway System. The rule, published in the Federal Register in December 2023, aimed to establish specific metrics for evaluating highway system performance, including emissions data. If approved, this resolution would nullify the rule, preventing the FHWA from implementing the emissions tracking requirement. This action directly affects how the FHWA measures highway system performance, specifically regarding environmental metrics.