Accelerating Access to Critical Therapies for ALS Act This bill establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities for scientific research utilizing data from expanded access to investigational ALS treatments for individuals who are not otherwise eligible for clinical trials. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other rare neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases. The Government Accountability Office must report to Congress about the grants provided under this bill, including an analysis of the impact of such grants on research and development of treatments for ALS.
Rep. Brett Guthrie
Sponsored bills
This bill posthumously provides for the award of a Congressional Gold Medal in commemoration of the 13 service members who died on August 26, 2021, while stationed at Hamid Karzai International Airport in Afghanistan.
Strategic Production Response Act This bill limits the drawdown of petroleum in the Strategic Petroleum Reserve until the Department of Energy develops a plan to increase the percentage of federal lands leased for oil and gas production.
Border Agents Stay Employed Act or the BASE Act This bill prohibits using federal funds to require any U.S. Customs and Border Protection officer or employee to receive a COVID-19 vaccine.
Early Hearing Detection and Intervention Act of 2021 This bill reauthorizes through FY2026 various activities carried out by the Health Resources and Services Administration, the Centers for Disease Control and Prevention, and the National Institute on Deafness and Other Communication Disorders that support screening and early intervention services for newborns, infants, and young children who are deaf or hard of hearing. The Government Accountability Office must also conduct a study of state early hearing detection and intervention programs, including with respect to disparities in accessing the programs.
POW Priority Care Act of 2021 This bill increases the priority status of former prisoners of war in the Department of Veterans Affairs health care system to the highest priority for hospital care and medical services.
Conscience Protection Act of 2021 This bill provides statutory authority for certain protections for health care providers that refuse to participate in abortions based on religious beliefs or other convictions. Health care providers include individual professionals, medical facilities, health insurance organizations, and social services providers that refer clients to health care services. The federal government and entities that receive federal funding for health-related activities, including state and local governments, may not discriminate against a health care provider that refuses to be involved in, or provide coverage for, abortions. Currently, similar requirements apply to various related activities, including certain employment or personnel decisions (the Church Amendments), abortion services training (the Coats-Snowe Amendment), qualified health plans offered through health insurance exchanges, and annual appropriations bills for the Department of Health and Human Services (HHS) and other federal agencies (the Weldon Amendment). The HHS Office for Civil Rights must investigate complaints of this kind of discrimination. Furthermore, HHS may terminate or reduce HHS funding for health-related activities if a person or entity fails to comply with nondiscrimination requirements. Additionally, the Department of Justice or any entity adversely affected by such discrimination may bring a civil action to obtain appropriate relief. A plaintiff does not need to seek or exhaust administrative remedies before bringing the action. A plaintiff may also bring an action, including one for money damages, against a governmental entity. In many cases, principles of sovereign immunity shield states and some localities from these kinds of actions.
Parents Bill of Rights Act This bill outlines various rights of parents and guardians regarding the elementary or secondary school education of their children. Among other requirements, the bill (1) directs local educational agencies to publicly post the curriculum for each elementary and secondary school grade level; and (2) requires schools to notify parents and guardians of their rights, including the right to review the school's curriculum and budget.
Maddy summaryHR 6020, the Supporting Medicare Providers Act of 2021, extends temporary Medicare payment increases for physicians through 2022 instead of ending them on January 1, 2022. It updates specific dates in Medicare law (Section 1848(t) of the Social Security Act) to maintain current payment rates for doctors treating Medicare patients. This directly affects physicians and clinics participating in Medicare who rely on these temporary payment adjustments. The bill makes no new policy changes but ensures existing payment levels continue for providers during 2022.
Fairness for Federal Contractors Act of 2021 This bill prohibits executive agencies from requiring contractors to receive a COVID-19 vaccination. The bill also requires the Government Accountability Office to study the degree to which Executive Order 14042 (Ensuring Adequate COVID Safety Protocols for Federal Contractors) caused disruptions to federal contracts, supply chains, and transportation systems.