Urges State and federal policymakers to ensure that individuals with sickle cell disease have access to all medications and forms of treatment for sickle cell disease and to services for enrollees with a diagnosis of sickle cell disease that are eligible for coverage under Medicare and Medicaid programs and to work to include new and effective treatments. Further urges State Medicaid programs to conduct an annual review to determine if the available covered medications, treatments, and services are adequate to meet the needs of enrollees with a diagnosis of sickle cell disease and whether Medicaid should seek to add additional medications, treatments, or services. Further urges State Medicaid programs to proactively explore innovative reimbursement, coverage, and access approaches that may facilitate equitable and appropriate access to potential curative one-time therapies for eligible patients. Further urges State Medicaid programs and other State officials to convene a multi-stakeholder dialogue, including patients, caregivers, physicians, and hospital administrators, to inform and begin working toward policies that will support equitable and appropriate access to innovative sickle cell disease therapies. Further urges the State and federal government to explore enhanced and expanded data collection efforts to determine how many people live with sickle cell disease in the United States, how sickle cell disease affects their health, and how researchers can improve medical treatments to extend and improve the lives of people with sickle cell disease. Further urges State and federal policymakers to examine and address, when possible, the regulatory barriers that have and may continue to impede patient access to novel therapies, including one-time, potentially curative therapies. Further urges State Medicaid programs to ensure that sickle cell patients in State Medicaid programs have access to potentially curative therapies when those treatments are proven and federally approved. Further urges State and federal policymakers to take all necessary actions to identify and remove other impediments to patients and their families, such as logistical and financial challenges, including missing work, childcare, and other issues, that may prevent or otherwise impede all patients, including sickle cell patients, from accessing potentially curative therapies.
Rep. Jehan Gordon-Booth
Sponsored bills
Mourns the passing of Esther Isabelle Brazier.
Commends the survivors and advocates of Survivors Speak Illinois 2022 for their work to stop violence and help those impacted by it.
Declares the month of June 2022 as Caribbean-American Heritage Month in the State of Illinois.
Believes that investments in business, home ownership, and community development in Black and Latino communities are essential for creating shared prosperity in our communities. Recognizes the importance of property values that come from new development and investment as a source of wealth for native populations. Commits to combating gentrification and displacement, to protect native populations as their communities change, and to support efforts to close the racial wealth gap in the State of Illinois. Further commits to studying the effects of gentrification and displacement in the State as well as studying solutions that will protect native populations and allow them to participate in the rebuilding of their communities, including but not limited to: (1) Increasing investments in home repair for longtime Black and Latino residents, particularly for seniors in the community on fixed incomes, through the Illinois Housing Development Authority's Single Family Rehabilitation Program; and (2) Increasing opportunities for home ownership for Black and Latino residents through Illinois Housing Development Authority mortgages and down payment assistance as well as financial institutions regulated under the Illinois Community Reinvestment Act; and (3) Expanded use of the Long Time Occupancy Homestead Property Tax Exemption, the Senior Citizen Assessment Freeze Homestead Exemption, the Homestead Improvement Exemption, and the Senior Citizen Tax Deferment in predominantly Black and Latino neighborhoods; and (4) Allowing communities to limit predatory rent increases for Black and Latino renters in gentrifying neighborhoods by repealing the Rent Control Preemption Act.
Mourns the death of Martha Watt of Peoria.
Mourns the death of Anthony "Ray" Little.
Amends the Illinois Insurance Code. Authorizes the Illinois Insurance Guaranty Fund, at the direction of its board of directors and subject to the approval of the Director of Insurance, to form and own a not-for-profit corporation to which the Fund may delegate certain of its powers and duties provided by the Code. Allows the not-for-profit corporation to contract to provide services to the Office of Special Deputy Receiver or any other person or organization authorized by law to carry out the duties of the Director in the capacity of receiver under specified provisions of the Code, the Illinois Life and Health Insurance Guaranty Association, an organizations in another state similar to the Illinois Insurance Guaranty Fund or the Illinois Life and Health Insurance Guaranty Association. Effective immediately. Senate Committee Amendment No. 1 Replaces everything after the enacting clause with the provisions of the introduced bill with the following changes. In provisions concerning the purpose of the Illinois Insurance Guaranty Fund Article of the Illinois Insurance Code, provides that the purpose of the Article is to also provide a mechanism for the Illinois Insurance Guaranty Fund to participate in and facilitate the process by which the assets of an insolvent company are marshaled and distributed beyond reimbursing the cost of covered claims, and that these provisions are inoperative 5 years after the effective date of the amendatory Act. Provides that language allowing the Fund to contract with the Office of Special Deputy Receiver or any other person or organizations authorized by law to carry out the duties of the Director in her or his capacity as a receiver under Article XIII of the Code are inoperative 5 years after the effective date of the amendatory Act. Removes provisions allowing the Illinois Insurance Guaranty Fund to contract to provide services to the Illinois Life and Health Insurance Guaranty Association and organizations in another state similar to the Illinois Insurance Guaranty Fund or the Illinois Life and Health Insurance Guaranty Association. Makes other changes. Effective immediately. House Committee Amendment No. 1 Deletes reference to: 215 ILCS 5/532 215 ILCS 5/538 215 ILCS 5/538.7 Adds reference to: 215 ILCS 5/1 from Ch. 73, par. 613 Replaces everything after the enacting clause. Amends the Illinois Insurance Code. Makes a technical change in a Section concerning the short title. House Floor Amendment No. 2 Deletes reference to: 215 ILCS 5/1 from Ch. 73, par. 613 Adds reference to: New Act 20 ILCS 3501/801-1 20 ILCS 3501/801-5 20 ILCS 3501/801-10 20 ILCS 3501/801-40 20 ILCS 3501/Art. 850 heading new 20 ILCS 3501/850-5 new 20 ILCS 3501/850-10 new 20 ILCS 3501/850-15 new 5 ILCS 100/5-45.9 new 5 ILCS 420/1-121 new 5 ILCS 420/4A-102 from Ch. 127, par. 604A-102 5 ILCS 420/4A-103 from Ch. 127, par. 604A-103 5 ILCS 430/5-50 20 ILCS 605/605-1075 new 20 ILCS 627/15 20 ILCS 627/40 new 20 ILCS 627/45 new 20 ILCS 627/55 new 20 ILCS 627/60 new 20 ILCS 655/5.5 from Ch. 67 1/2, par. 609.1 20 ILCS 1505/1505-215 20 ILCS 1505/1505-220 new 20 ILCS 3125/10 20 ILCS 3125/15 20 ILCS 3125/20 20 ILCS 3125/30 20 ILCS 3125/40 20 ILCS 3125/45 20 ILCS 3125/55 new 20 ILCS 3855/1-5 20 ILCS 3855/1-10 20 ILCS 3855/1-20 20 ILCS 3855/1-35 20 ILCS 3855/1-56 20 ILCS 3855/1-70 20 ILCS 3855/1-75 20 ILCS 3855/1-92 20 ILCS 3855/1-125 20 ILCS 3855/1-128 new 30 ILCS 105/5.427 30 ILCS 105/5.935 new 30 ILCS 105/5.936 new 30 ILCS 105/5.937 new 30 ILCS 500/1-10 30 ILCS 575/4f 30 ILCS 575/7 from Ch. 127, par. 132.607 35 ILCS 200/1-130 35 ILCS 200/10-5 35 ILCS 200/10-610 105 ILCS 5/10-22.11 from Ch. 122, par. 10-22.11 220 ILCS 5/4-604 new 220 ILCS 5/4-604.5 new 220 ILCS 5/4-605 new 220 ILCS 5/5-117 220 ILCS 5/8-103B 220 ILCS 5/8-201.7 new 220 ILCS 5/8-201.8 new 220 ILCS 5/8-201.9 new 220 ILCS 5/8-201.10 new 220 ILCS 5/8-218 new 220 ILCS 5/8-402.2 new 220 ILCS 5/8-406 from Ch. 111 2/3, par. 8-406 220 ILCS 5/8-512 new 220 ILCS 5/9-228 new 220 ILCS 5/9-229 220 ILCS 5/9-241 from Ch. 111 2/3, par. 9-241 220 ILCS 5/16-105.5 new 220 ILCS 5/16-105.6 new 220 ILCS 5/16-105.7 new 220 ILCS 5/16-105.10 new 220 ILCS 5/16-105.17 new 220 ILCS 5/16-107.5 220 ILCS 5/16-107.6 220 ILCS 5/16-108 220 ILCS 5/16-108.18 new 220 ILCS 5/16-108.19 new 220 ILCS 5/16-108.20 new 220 ILCS 5/16-108.21 new 220 ILCS 5/16-108.25 new 220 ILCS 5/16-108.30 new 220 ILCS 5/16-111.5 220 ILCS 5/16-111.10 new 220 ILCS 5/16-127 220 ILCS 5/16-135 new 220 ILCS 5/17-900 new 415 ILCS 5/3.131 new 415 ILCS 5/9.15 415 ILCS 5/9.18 new 415 ILCS 5/22.59 415 ILCS 120/1 415 ILCS 120/5 415 ILCS 120/10 415 ILCS 120/15 415 ILCS 120/27 new 415 ILCS 120/35 415 ILCS 120/40 415 ILCS 120/45 415 ILCS 120/20 rep. 415 ILCS 120/22 rep. 415 ILCS 120/24 rep. 415 ILCS 120/30 rep. 415 ILCS 120/31 rep. 415 ILCS 120/32 rep. 625 ILCS 5/13C-10 820 ILCS 65/10 Replaces everything after the enacting clause. Creates the Energy Transition Act. Includes provisions regarding: Regional Administrators; the Clean Jobs Workforce Network Program; the Clean Jobs Curriculum; the Energy Transition Barrier Reduction Program; Energy Transition Navigators; the Illinois Climate Works Preapprenticeship Program; the Clean Energy Contractor Incubator Program; the Returning Residents Clean Jobs Training Program; the Clean Energy Primes Contractor Accelerator Program; the Jobs and Environmental Justice Grant Program; and the Energy Workforce Advisory Council. Repeals the Act 24 years after the effective date. Creates the Energy Community Reinvestment Act. Includes provisions regarding: the Energy Transition Workforce Commission; the Energy Transition Community Grants; the Displaced Energy Workers Bill of Rights; the Displaced Energy Worker Dependent Transition Scholarship; an Energy Community Investment Report; and administrative review. Repeals the Act 24 years after the effective date. Creates the Community, Energy, Climate, and Jobs Planning Act. Includes provisions regarding: the creation of Community Energy, Climate, and Jobs Plans; the Community Energy, Climate, and Jobs Planning process; and joint Community Energy, Climate, and Jobs Plans. Repeals the Act 24 years after the effective date. Creates the Clean Energy Jobs and Justice Fund Act. Includes provisions regarding: the Clean Energy Jobs and Justice Fund; the board of directors; powers and duties; primary responsibilities in early program development; executive director and fund management; and dissolution of the Fund. Repeals the Act 24 years after the effective date. Makes additional and conforming changes in: the Illinois Finance Authority Act; the Illinois Administrative Procedure Act; the Illinois Governmental Ethics Act; the State Officials and Employees Ethics Act; the Department of Commerce and Economic Opportunity Law of the Civil Administrative Code of Illinois; the Electric Vehicle Act; the Illinois Enterprise Zone Act; the Department of Labor Law of the Civil Administrative Code of Illinois; the Energy Efficient Building Act; the Illinois Power Agency Act; the State Finance Act; the Illinois Procurement Code; the Business Enterprise for Minorities, Women, and Persons with Disabilities Act; the Property Tax Code; the School Code; the Public Utilities Act; the Environmental Protection Act; the Alternate Fuels Act (and renames it the Electric Vehicle Rebate Act); the Illinois Vehicle Code; and the Illinois Worker Adjustment and Retraining Notification Act. Makes other changes. Effective immediately. House Floor Amendment No. 4 In provisions of the Department of Commerce and Economic Opportunity Law of the Civil Administrative Code of Illinois concerning the Energy Transition Assistance Fund: removes language requiring the available funding for each year to be allocated from the Fund starting in delivery year 2026 and ending in delivery year 2035, for costs related to emissions reductions from municipal coal-fired units, up to $20,000,000 annually; provides that the amount of funding needs of the programs reliant on the Fund shall not exceed $180,000,000 (rather than $200,000,000); and removes language requiring the Department of Commerce and Economic Opportunity to determine the appropriate annual level of financial support for municipal coal-fired units receiving funding to facilitate emissions reductions projects. In provisions of the Public Utilities Act concerning the Energy Transition Assistance Fund, provides that, for each utility, the energy transition assistance charge shall not exceed 1.3% (rather than 1.45%) of the amount paid per kilowatthour by those customers during the year ending May 31, 2009. In provisions of the Environmental Protection Act concerning greenhouse gases, provides that if the emissions reduction requirement is not achieved by December 31, 2035, the plant shall retire one or more units or otherwise reduce its COe emissions by 45% from existing emissions by June 30, 2038.
Commends the work being done by Crime Survivors for Safety and Justice to prevent people from becoming victims and to assist all survivors in the recovery from crime and trauma.
Mourns the passing of Daron Richard "D.T." Tunks of Peoria and Conley, Georgia.