Maddy summaryHB 1288 would create a Rare Disease Advisory Council within the state Department of Health. The council would provide direct input to the state on the needs of individuals living with rare diseases. Its key mechanism is to advise state health officials on policies and resources affecting rare disease patients. The bill, introduced in January 2025 but not yet enacted, focuses on establishing this advisory body to address gaps in care coordination and support.
Sponsored bills
Requires all state agencies proposing, adopting, amending, or repealing a rule to make the full text of the rules of the agency available on the website of the Office of the Lieutenant Governor in a digitally accessible and searchable format. Effective 7/1/3000. (HD1)
Repeals the leasing restriction on owner-builders who obtain an owner-builder exemption to act as their own contractor and who build or improve residential or farm buildings or structures on property they own or lease and do not offer the buildings or structures for sale. Requires an owner or lessee to provide signed written notice that the structure for lease or sublease was built or improved by an individual who is not a licensed contractor. Effective 7/1/3000. (HD1)
Expands workers' compensation medical benefits for firefighters to include coverage for adenocarcinoma or mesothelioma of the respiratory system; cancer of the buccal cavity, colon, pharynx, and thyroid; and malignant melanoma. Specifies that an employer may prove that the cancer or disease was not associated with the firefighting duties to deny medical benefits under workers' compensation law. Effective 7/1/3000. (HD1)
Adds the Chairperson of the Hawaiian Homes Commission or the Chairperson's designee to the Commission on Water Resource Management. Clarifies that only the five, non-ex-officio members appointed by the Governor are required to have substantial experience in water resource management.
Maddy summaryHB 626 allocates state funds to the Hawaii Department of Education for its Hoʻākea Program, effective July 1, 3000. The bill provides budgetary resources to support the program's operations, though specific activities or eligibility details are not outlined in the abstract. It directly affects the Department of Education and the program's designated beneficiaries, such as students or schools participating in the initiative. The legislation focuses solely on funding allocation, without specifying additional requirements or changes to existing policies.
Appropriates funds for critical repairs, maintenance, demolition, design, and construction for facilities of the College of Tropical Agriculture and Human Resilience at the University of Hawaii at Manoa. Establishes and appropriates funds for positions within the University of Hawaii for the College of Tropical Agriculture and Human Resilience. Effective 7/1/3000. (HD1)
Authorizes the issuance of general obligation bonds and appropriates moneys for capital improvement projects for the benefit of the 43rd Representative District.
Increases the buffer zone for restricted use pesticides around schools to one-half mile. Allows the use of restricted use pesticides within the buffer zone as part of invasive species control conducted by the Department of Agriculture or invasive species committees organized under the University of Hawaii Pacific Cooperative Studies Unit.
Requires the Department of Education to authorize and facilitate complex areas or individual public schools to form their own farm to school meal programs through partnerships to meet the local farm to school meal goal of thirty per cent of food served in the school to consist of locally sourced products by 2030. Allows the Department of Education to establish a plant-based meal program no later than the 2026-2027 school year. Effective 7/1/3000. (HD1)