Public health; establishing the Oklahoma Rare Disease Advisory Council. Effective date.
SB 225 establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health. The council directly serves Oklahomans with rare diseases, their caregivers, and healthcare providers by providing guidance on public education, legislative recommendations, and policy improvements. Key provisions require the council to conduct public hearings, develop recommendations on healthcare access and emergency planning, and submit annual reports to the Governor and legislative leaders. Membership includes 13 appointed members representing patients, medical professionals, healthcare agencies, industry, and research experts. The bill creates a formal structure to address unmet needs in rare disease care through state-level coordination.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 3, 2025
Last action Feb 4, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
0
Committee
0
Feb 3, 2025
Introduced
First Reading
upper
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Carri Hicks
DDemocratic
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