Newborn screening program.
Summary
Existing law requires the State Department of Public Health to establish a program for the development, provision, and evaluation of genetic disease testing. Existing law establishes the continuously appropriated Genetic Disease Testing Fund (GDTF) , consisting of fees paid for newborn screening tests, and states the intent of the Legislature that all costs of the genetic disease testing program be fully supported by fees paid for newborn screening tests, which are deposited in the GDTF. Existing law also authorizes moneys in the GDTF to be used for the expansion of the Genetic Disease Branch Screening Information System to include cystic fibrosis, biotinidase, severe combined immunodeficiency (SCID) , and adrenoleukodystrophy (ALD) and exempts the expansion of contracts for this purpose from certain provisions of the Public Contract Code, the Government Code, and the State Administrative Manual, as specified. This bill would require the department to expand statewide screening of newborns to include screening for Duchenne Muscular Dystrophy. By expanding the purposes for which moneys from the fund may be expended, this bill would make an appropriation.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2024
Committee Review
Floor Vote
Governor
Introduced Feb 14, 2024
Last action May 16, 2024
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
7
Key actions
4
Committee
6
May 16, 2024
Lower · Passed
In committee: Held under submission.
lower
May 8, 2024
Committee
In committee: Set, first hearing. Referred to APPR. suspense file.
lower
Apr 24, 2024
Lower · Passed
From committee: Do pass and re-refer to Com. on APPR. with recommendation: To Consent Calendar. (Ayes 16. Noes 0.) (April 23). Re-referred to Com. on APPR.
lower
Mar 25, 2024
Lower · Passed
In committee: Hearing postponed by committee.
lower
Mar 4, 2024
Committee
Referred to Com. on HEALTH.
lower
Feb 15, 2024
Lower · Passed
From printer. May be heard in committee March 16.
lower
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
BE
Bill Essayli
RRepublican
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