Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".

This resolution (HRES 209) designates April 5, 2025, as "Barth Syndrome Awareness Day" to raise public awareness about Barth syndrome, a rare genetic disorder primarily affecting males. It directly supports patients, families, and caregivers of the estimated fewer than 150 diagnosed individuals in the U.S. who face challenges with diagnosis, limited treatments, and high mortality rates. The bill’s key mechanism is a symbolic House resolution expressing support for the awareness day, recognizing the need for improved diagnosis, research, and treatment development for this ultrarare condition. It does not create new programs or funding but aims to foster greater attention to Barth syndrome through official recognition.