Expressing support for the designation of April 5, 2026, as "Barth Syndrome Awareness Day".
HRES 1060 is a symbolic resolution designating April 5, 2026, as "Barth Syndrome Awareness Day" in the U.S. House of Representatives. It directly supports individuals and families affected by Barth syndrome, a rare genetic disorder primarily impacting males that causes heart, muscle, and immune system issues. The resolution expresses support for raising public awareness, improving early diagnosis, advancing research, and developing treatments for this condition - though it does not create new funding or policy changes. It serves as a non-binding statement of recognition by Congress, acknowledging the challenges faced by the small patient community (fewer than 160 diagnosed in the U.S.) and the need for greater attention to this ultrarare disease.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2026
Committee Review
Floor Vote
President
Introduced Feb 11, 2026
Last action Feb 11, 2026
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Feb 11, 2026
Committee
Referred to the House Committee on Energy and Commerce.
lower
1 primary · 11 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Paul Tonko
DDemocratic
Co
Doris O. Matsui
DDemocratic
Co
George Latimer
DDemocratic
Co
Gus M. Bilirakis
RRepublican
Co
Jake Auchincloss
DDemocratic
Co
Joe Wilson
RRepublican
Co
Lori Trahan
DDemocratic
Co
Morgan McGarvey
DDemocratic
Co
Ralph Norman
RRepublican
Co
Sharice Davids
DDemocratic
Co
Sheri Biggs
RRepublican
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