Shane DiGiovanna Act

This bill requires the Secretary of Health and Human Services to create a two-year demonstration program that would make certain wound care treatments mandatory for Medicaid coverage for people with epidermolysis bullosa. The program would include over-the-counter medications, antiseptics, antibiotic ointments, and specific wound care supplies such as dressings and bandages. It would operate nationwide and require states to include these items and services in their Medicaid plans or waivers. At the end of the program, the Secretary must submit a report to Congress evaluating the program's impact on treatment costs and health outcomes, along with recommendations on preventing hospitalizations.