National Plan for Epilepsy Act

HR 1189, the National Plan for Epilepsy Act, creates a coordinated federal strategy to address epilepsy through a National Plan for Epilepsy. The plan requires the Secretary of Health and Human Services to establish an annual assessment, maintain a diverse Advisory Council (including people with epilepsy, caregivers, and experts), and coordinate research and care across federal agencies. Key provisions include annual progress reports to Congress, data sharing between agencies, and recommendations to improve diagnosis, treatment access, and reduce epilepsy-related disparities. The plan expires December 31, 2035, and directly affects the estimated 3.4 million people in the U.S. living with epilepsy and their caregivers.