Ellie’s Law

HR 902, "Ellie’s Law," authorizes $10 million annually from fiscal years 2024 through 2028 for the National Institute of Neurological Disorders and Stroke to conduct broader research on unruptured brain aneurysms. The funding aims to study diverse patient populations by age, sex, and race, supplementing existing research budgets without replacing them. This bill directly affects researchers and future patients by increasing federal investment in a condition impacting 6.6 million Americans, with current federal spending at only $2.08 per affected person yearly. The legislation focuses on advancing scientific understanding to improve prevention and treatment, citing the high mortality rate (50% fatal) and significant healthcare costs ($4.1 billion annually in direct costs) associated with brain aneurysm ruptures.