HR 5647 United States House · 118th Congress

Childhood Cancer Clinical Trials Act

This bill requires health insurance plans (both private and Medicare) to cover routine patient costs for children with rare pediatric diseases participating in approved clinical trials, even when care is provided by non-network providers. Specifically, it mandates that insurers apply the same copay or coinsurance rate for non-participating providers as they would for in-network providers during clinical trial participation. The law expands the definition of "routine costs" to include consultation and referral services related to these trials and updates Medicare coverage rules to align with this requirement. These changes apply to plans beginning January 1, 2024, directly affecting families of children with rare pediatric cancers enrolled in qualifying clinical trials.
Bill status in committee 1 of 4 stages cleared
Introduction
Sep 2023
Committee Review
Floor Vote
President
Introduced Sep 21, 2023 Last action Dec 17, 2024
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Full legislative history

Actions timeline

Total actions
4
Key actions
0
Committee
3
Dec 17, 2024
Committee
Referred to the Subcommittee on Health.
lower
Sep 22, 2023
Committee
Referred to the Subcommittee on Health.
lower
Sep 21, 2023
Committee
Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.
lower
Sep 21, 2023
Introduced
Introduced in House
lower
1 primary · 5 co-sponsors

Sponsors