Relating to the establishment of the sickle cell disease registry.

SB 820 creates a statewide sickle cell disease registry within Texas' Health and Safety Code. It requires hospitals and other healthcare facilities treating sickle cell disease patients to submit case data to the Department of Health, which will compile this information into a single, centralized database. The registry must include all cases in Texas and other relevant data to aid treatment and research, while strictly protecting patient confidentiality under HIPAA and Texas law. The department will analyze the data, publish findings for medical professionals and the public, and submit annual reports to the legislature, with the law taking effect on September 1, 2025.