Relating to establishment of the Texas Rare Disease Advisory Council.

SB 1140 establishes the Texas Rare Disease Advisory Council to advise state officials on the needs of Texans with rare diseases. The council, composed of 12 members including patients, caregivers, medical professionals (geneticists, nurses, physicians), hospital administrators, rare disease organizations, and industry representatives, will provide input to the legislature, governor, and state agencies. It requires the Texas Department of Health to designate an institution of higher education to provide administrative support. This bill directly affects individuals with rare diseases in Texas by creating a formal channel for their input into state health policy decisions.