HB 2627 Pennsylvania House · 2023-2024 Regular Session

An Act providing for duties of direct-to-consumer genetic testing companies and for prohibition on disclosure of genetic data of consumers; and imposing civil penalties.

This bill, known as the Genetic Information Privacy Act, establishes new rules for companies that sell direct-to-consumer genetic testing kits in Pennsylvania. It requires these businesses to obtain specific, separate consent from customers before using their genetic data for purposes like research, marketing, or sharing with third parties, while also mandating strong security measures and giving consumers the right to delete their data and biological samples. The law strictly prohibits companies from sharing a customer's genetic information with health or life insurance providers and employers without written permission, and it allows the state Attorney General to impose civil penalties of up to $2,500 per violation for failing to follow these privacy protections.
Bill status in committee 1 of 4 stages cleared
Introduction
Oct 2024
Committee Review
Floor Vote
Governor
Introduced Oct 9, 2024 Last action Oct 9, 2024
Floor votes

How they voted

No floor votes recorded yet.
Full legislative history

Actions timeline

Total actions
1
Key actions
0
Committee
1
Oct 9, 2024
Committee
Referred to Consumer Protection, Technology & Utilities
lower
0 primary · 14 co-sponsors

Sponsors

No sponsor information available.