Relating to sickle cell disease.
Summary
Establishes Statewide Steering Committee on Sickle Cell Disease. Requires committee, with regards to sickle cell disease, to establish statewide network of stakeholders, provide education services, identify funding sources and make recommendations. Requires Oregon Health Authority, in consultation with committee, to provide social support and other services for individuals with sickle cell disease, establish system to provide information to individuals, or parents or guardians of individuals, who have sickle cell trait, maintain webpage with resources for health care providers regarding care and treatment of individuals with sickle cell disease and conduct annual review of treatment plans and services provided for individuals with sickle cell disease eligible for medical assistance under Oregon Health Plan. Requires committee, in consultation with authority, to study ways to provide outreach and improve access to and coordination of health care, social support and other services for individuals with sickle cell disease, whether to establish sickle cell disease registry and whether medications, treatments and services for individuals with sickle cell disease covered by Oregon Health Plan are sufficient. Directs committee to submit findings to interim committees of Legislative Assembly related to health care no later than June ] November 30, 2024. Requires health benefit plans to cover fertility preservation for individuals with sickle cell disease. ].
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2023
Committee Review
Floor Vote
Governor
Introduced Jan 9, 2023
Last action Jun 25, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
7
Key actions
2
Committee
4
Jun 25, 2023
Lower · Passed
In committee upon adjournment.
lower
Mar 31, 2023
Committee
Referred to Ways and Means by prior reference.
lower
Mar 31, 2023
Lower · Passed
Recommendation: Do pass with amendments, be printed A-Engrossed, and be referred to Ways and Means by prior reference.
lower
Jan 16, 2023
Committee
Referred to Behavioral Health and Health Care with subsequent referral to Ways and Means.
lower
Jan 9, 2023
Introduced
First reading. Referred to Speaker's desk.
lower
4 primary · 3 co-sponsors
Sponsors
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