Relating to rare diseases; declaring an emergency.
Summary
Directs Governor, with recommendations from Oregon Health and Science University Board of Directors, to appoint Rare Disease Ombudsman. Allows Rare Disease Ombudsman to solicit and accept gifts, grants and donations. Establishes Rare Disease Ombudsman Fund. Continuously appropriates moneys in fund to office of Rare Disease Ombudsman for certain purposes. Declares emergency, effective on passage.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2019
Committee Review
Floor Vote
Governor
Introduced Jan 14, 2019
Last action Jul 1, 2019
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
3
Key actions
1
Committee
2
Jul 1, 2019
Lower · Passed
In committee upon adjournment.
lower
Jan 15, 2019
Committee
Referred to Health Care with subsequent referral to Ways and Means.
lower
Jan 14, 2019
Introduced
First reading. Referred to Speaker's desk.
lower
2 primary · 2 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
BS
Barbara Smith Warner
DDemocratic
P
Mike McLane
RRepublican
Co
Cliff Bentz
RRepublican
Co
Rob Nosse
DDemocratic
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