Expand Sickle Cell Disease Programs and Svcs.
SB 283 appropriates $1.678 million annually in recurring funds (plus supplemental nonrecurring funds) to expand sickle cell disease services for North Carolina's estimated 7,000+ patients. It directly funds six medical centers (including Duke, UNC Chapel Hill, and Atrium Health) for comprehensive care, creates transition coordinator positions to support youth moving from pediatric to adult care, and provides grants to community organizations in underserved areas. The bill also allocates funds to develop a statewide emergency department toolkit for better acute care and supports the state's sickle cell program with new staff positions. All funding is allocated for the 2025-2027 biennium and becomes effective July 1, 2025.
Bill status
died
1 of 4 stages cleared
Introduction
Mar 2025
Committee Review
Floor Vote
Governor
Introduced Mar 13, 2025
Last action Mar 17, 2025
Maddy AI version diff · 1 comparison
What changed between versions
Filed
→
Edition 1
·
3 edits
MINOR
The bill text was reformatted and renumbered from a filed draft to an official edition, with minor text corrections. The substantive policy content regarding funding amounts and program allocations remains unchanged. A small text correction was made to complete a truncated sentence about disseminating an evidence-based toolkit.
TECHNICAL
The document header was updated from a filed draft version to an official edition, including updated dates and document identifiers.
The bill was renumbered from DRS45136-MGa-29 to S283-v-1 to reflect its official status in the legislative process.
A truncated sentence was completed, changing 'evidence-ba' to 'evidence-based sickle cell disease toolkit to emergency department providers throughout the State and to facilitate th'.
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
5
Key actions
0
Committee
2
Mar 17, 2025
Committee
Re-ref Com On Appropriations/Base Budget
upper
Mar 17, 2025
Committee
Ref To Com On Rules and Operations of the Senate
upper
Mar 13, 2025
Introduced
Filed
upper
1 primary · 5 co-sponsors
Sponsors
Ask Maddy
·
AI policy assistant
Ask Maddy about SB 283
Scope: NC
Hi! I can help you understand SB 283. What would you like to know?
Try one of these
i
Maddy answers using official bill text and legislative records. Always verify before sharing.
Sources cited inline