Establishes a state frontotemporal degeneration registry
Summary
Establishes a state frontotemporal degeneration registry; defines terms; requires every physician, nurse practitioner, nurse physician assistant and general hospital that diagnoses or is treating a patient diagnosed with an FTD disorder to give notice to the department; requires certain information to be confidential; sets forth the duties of the commissioner of health; requires the department of health to create and maintain a webpage.
Bill status
signed
all 5 stages cleared
Introduction
Jan 2025
Committee Review
May 2025
Senate Passage
May 2025
Assembly Passage
Jun 2025
Signed into Law
Oct 2025
Introduced Jan 8, 2025
Signed Oct 16, 2025
Maddy AI version diff · 2 comparisons
What changed between versions
S598A
→
S598B
·
4 edits
MODERATE
This bill was revised to change the registry's structure from a Title under the Public Health Law to a new Article 20-C, and updated section numbering to match the new article. The substantive policy content regarding data collection, reporting requirements, and registry establishment remains largely similar, though some specific language about advisory committees and reporting timelines was modified.
Scope change
The bill's scope remains focused on establishing a state registry for frontotemporal degeneration disorders, but the organizational structure within the Public Health Law changed from a Title to an Article, and section numbers were renumbered accordingly.
TECHNICAL
Changed the bill's structure from adding a new Title 9 to adding a new Article 20-C to the Public Health Law, with corresponding section number changes (e.g., 269-a through 269-d became 2015 through 2019).
Minor formatting changes including spacing adjustments in the title and act language, and updated document tracking numbers.
REQUIREMENT
Replaced the requirement for an advisory committee with specific member selection procedures by the governor and legislature with a more streamlined approach requiring the department to consult with experts, patients, and researchers.
Changed the reporting timeline from 'within ninety days' of the effective date to 'no later than one hundred eighty days' for physicians and healthcare providers to report FTD diagnoses.
Floor votes · Senate May 28, 2025 · Assembly Jun 6, 2025
How they voted
61–0
Passed · 2 other
Total votes 63
May 28, 2025
D
Democratic41
97% Yea
R
Republican22
95% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
18
Key actions
7
Committee
3
Amendments
4
Oct 16, 2025
Signed into law
SIGNED CHAP.479
upper
Jun 6, 2025
Lower · Passed
PASSED ASSEMBLY
lower
May 28, 2025
Committee
REFERRED TO WAYS AND MEANS
lower
May 28, 2025
Upper · Passed
PASSED SENATE
upper
Apr 2, 2025
Upper · Passed
PRINT NUMBER 598B
upper
Apr 2, 2025
Upper · Passed
AMEND AND RECOMMIT TO FINANCE
upper
Feb 13, 2025
Upper · Passed
PRINT NUMBER 598A
upper
Feb 13, 2025
Upper · Passed
AMEND AND RECOMMIT TO FINANCE
upper
Jan 21, 2025
Committee
REPORTED AND COMMITTED TO FINANCE
upper
Jan 8, 2025
Committee
REFERRED TO HEALTH
upper
1 primary · 5 co-sponsors
Sponsors
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