S 1287 New York Senate · 2025 Regular Session

Establishes the rare disease advisory council

Summary
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Bill status passed both 4 of 5 stages cleared
Introduction
Jan 2025
Committee Review
Feb 2026
Senate Passage
Feb 2026
Assembly Passage
Mar 2026
Governor
Introduced Jan 9, 2025 Last action Mar 10, 2026
Maddy AI version diff · 2 comparisons

What changed between versions

S1287A S1287B · 4 edits
MODERATE
The bill was amended to add five new appointees to the Rare Disease Advisory Council, increasing the total membership from fifteen to seventeen. Two new members will be appointed by the Assembly minority leader and the Senate minority leader, expanding representation beyond the original sponsors and leadership. This change ensures broader political representation and potentially more diverse perspectives on rare disease policy.
Scope change
The scope of the bill was expanded by increasing the council membership size and adding new appointing authorities, which may affect the council's composition and decision-making dynamics.
REQUIREMENT

Increased council membership from fifteen to seventeen members

Added one member appointment by the Assembly minority leader

Added one member appointment by the Senate minority leader

ELIGIBILITY

Updated bill sponsors to include additional senators (ADDABBO, ASHBY, CLEARE, COMRIE, COONEY, FERNANDEZ, GALLIVAN, MARTINS, MAY, WEBB)

Floor votes · Senate Mar 19, 2025 · Assembly Mar 10, 2026

How they voted

600
Passed · 3 other
Total votes 63
Mar 19, 2025
D Democratic41
38 Yea 3
92% Yea
R Republican22
22 Yea
100% Yea
Vote distribution
All Yea All Nay Mixed No data
Full legislative history

Actions timeline

Total actions
26
Key actions
7
Committee
4
Amendments
4
Mar 10, 2026
Lower · Passed
PASSED ASSEMBLY
lower
Feb 10, 2026
Committee
REFERRED TO WAYS AND MEANS
lower
Feb 10, 2026
Upper · Passed
PASSED SENATE
upper
Jan 8, 2026
Upper · Passed
PRINT NUMBER 1287B
upper
Jan 8, 2026
Upper · Passed
AMEND AND RECOMMIT TO HEALTH
upper
Jan 7, 2026
Committee
REFERRED TO HEALTH
upper
Mar 19, 2025
Committee
REFERRED TO WAYS AND MEANS
lower
Mar 19, 2025
Upper · Passed
PASSED SENATE
upper
Jan 30, 2025
Upper · Passed
PRINT NUMBER 1287A
upper
Jan 30, 2025
Upper · Passed
AMEND AND RECOMMIT TO HEALTH
upper
Jan 9, 2025
Committee
REFERRED TO HEALTH
upper
1 primary · 14 co-sponsors

Sponsors