Memorializing Governor Kathy Hochul to proclaim October 25-31, 2026, as Epidermolysis Bullosa Awareness Week in the State of New York, more commonly known as Butterfly Children Awareness Week

This bill asks the Governor of New York to officially designate the week of October 25-31, 2026, as Epidermolysis Bullosa Awareness Week, also known as Butterfly Children Awareness Week. The legislation aims to increase public understanding of this rare genetic disorder, which causes extremely fragile skin and recurrent blistering in patients of all ages. By highlighting the challenges faced by those with the condition, the bill seeks to encourage greater awareness and support for affected families and patients. The primary action is a formal proclamation that will be sent to the Governor for her signature.