A 10521 New York Assembly · 2025 Regular Session

Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state

This bill expands New York State's newborn screening program to include five additional rare genetic conditions: CLN2, MPS IVA, MPS VI, MPS VII, and Fabry disease. The legislation directly affects newborns in New York by requiring healthcare providers to test for these conditions shortly after birth, enabling earlier diagnosis and treatment. The bill achieves this by amending the state's public health law to add these specific diseases to the official screening panel. This change ensures that infants at risk for these treatable conditions can receive timely medical intervention. The law takes effect immediately upon passage.
Bill status in committee 1 of 4 stages cleared
Introduction
Mar 2026
Committee Review
Floor Vote
Governor
Introduced Mar 6, 2026 Last action Apr 7, 2026
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What changed between versions

A10521 A10521A · 3 edits
MINOR
The bill was amended to include a new requirement that the state health commissioner must make newborn screening tests available for the five designated diseases within twelve months of the act's effective date. This change adds a specific implementation timeline and operational mandate to ensure the screening program is ready for use shortly after the law is passed.
Scope change
The bill's scope regarding the diseases covered remains unchanged, but the scope of the commissioner's operational duties has expanded to include a strict deadline for test availability.
TIMELINE

Added a requirement that screening tests for the five new diseases must be available within twelve months of the effective date.

REQUIREMENT

Added a new subdivision to the Public Health Law mandating the commissioner ensure test availability for the designated conditions.

TECHNICAL

Adjusted the bill text to reflect that the act has been amended, discharged from committee, and re-referred.

Floor votes

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Full legislative history

Actions timeline

Total actions
3
Key actions
2
Committee
1
Amendments
2
Apr 7, 2026
Lower · Passed
PRINT NUMBER 10521A
lower
Apr 7, 2026
Lower · Passed
AMEND AND RECOMMIT TO HEALTH
lower
Mar 6, 2026
Committee
REFERRED TO HEALTH
lower
1 primary · 7 co-sponsors

Sponsors