Designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey.
AJR 19 designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey. This symbolic resolution aims to raise public awareness about cystinosis, a rare genetic disorder affecting approximately 500-600 Americans, including children in New Jersey. The bill requests the Governor issue an annual proclamation encouraging state agencies, organizations, and residents to support education and advocacy efforts. It specifically references the Cystinosis Research Network's existing May 7 designation to promote early detection and treatment awareness. The resolution does not create new laws or funding, but seeks to amplify existing awareness initiatives for a condition that causes organ damage if undetected.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2026
Committee Review
Floor Vote
Governor
Introduced Jan 13, 2026
Last action Jan 13, 2026
Floor votes
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Full legislative history
Actions timeline
Total actions
1
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0
Committee
0
Jan 13, 2026
Introduced
Introduced, Referred to Assembly Health Committee
lower
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Mike Venezia
DDemocratic
Co
Carmen Morales
DDemocratic
Co
Gabe Rodriguez
DDemocratic
Co
Verlina Reynolds-Jackson
DDemocratic
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