AJR 19 New Jersey General Assembly · 2026-2027 Regular Session

Designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey.

AJR 19 designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey. This symbolic resolution aims to raise public awareness about cystinosis, a rare genetic disorder affecting approximately 500-600 Americans, including children in New Jersey. The bill requests the Governor issue an annual proclamation encouraging state agencies, organizations, and residents to support education and advocacy efforts. It specifically references the Cystinosis Research Network's existing May 7 designation to promote early detection and treatment awareness. The resolution does not create new laws or funding, but seeks to amplify existing awareness initiatives for a condition that causes organ damage if undetected.
Bill status in committee 1 of 4 stages cleared
Introduction
Jan 2026
Committee Review
Floor Vote
Governor
Introduced Jan 13, 2026 Last action Jan 13, 2026
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Jan 13, 2026
Introduced
Introduced, Referred to Assembly Health Committee
lower
1 primary · 3 co-sponsors

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