Designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey.
AJR 190 designates May 7 of each year as "Cystinosis Awareness Day" in New Jersey. This symbolic resolution aims to raise public awareness about cystinosis, a rare genetic disorder causing cystine crystal buildup that damages organs like kidneys and eyes. It specifically requests the Governor issue an annual proclamation encouraging state agencies, organizations, and citizens to participate in awareness activities. The bill directly supports individuals affected by cystinosis - approximately 500-600 Americans, including children in New Jersey - and advances efforts to improve early detection and access to treatment for this condition.
Bill status
in committee
1 of 4 stages cleared
Introduction
Sep 2024
Committee Review
Floor Vote
Governor
Introduced Sep 12, 2024
Last action Sep 12, 2024
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
1
Key actions
0
Committee
0
Sep 12, 2024
Introduced
Introduced in the Assembly, Referred to Assembly Health Committee
lower
1 primary · 3 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Mike Venezia
DDemocratic
Co
Carmen Morales
DDemocratic
Co
Gabe Rodriguez
DDemocratic
Co
Verlina Reynolds-Jackson
DDemocratic
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