Rare Disease Task Force; establish within the Mississippi Rare Disease Advisory Council.
What changed between versions
Established a new Rare Disease Task Force within the Mississippi Rare Disease Advisory Council to address gaps in care, funding, and insurance coverage for rare diseases.
Removed the Rural Hospital Pilot Program which authorized the State Health Officer to issue licenses for outpatient dialysis units, ambulatory surgical facilities, and geriatric psychiatric units at rural hospitals.
Added specific definitions for 'rare disease', 'council', 'task force', and 'alternative funding program' to clarify the bill's focus and terminology.
Amended House Bill No. 1622 to replace the term 'license' with 'exemption' in the Small Community Hospital Pilot Program section to improve administrative consistency.
Established a seven-member task force with specific appointment procedures and defined powers to identify care gaps and advise policymakers on evidence-based solutions.
Added reporting requirements mandating an annual report to the Governor and Legislature regarding task force activities, rare disease therapy access trends, and alternative funding program impacts.