Membership of the Rare Disease Advisory Council modification
SF 1069 modifies the membership structure of Minnesota's Rare Disease Advisory Council. It adds specific new categories, including requiring at least one council member with a rare disease or as a caregiver to reside in rural Minnesota, and creates formal legislative representation (two senators and two House members appointed by leadership). The bill also establishes clear roles for ex officio members (health commissioner, Mayo Medical School, University of Minnesota Medical School) and allows for temporary "ad hoc" members with expertise for specific projects. These changes clarify who serves on the council but do not alter the council's purpose or direct healthcare policies. The bill affects the council's composition, not the delivery of rare disease care.
Bill status
in committee
1 of 4 stages cleared
Introduction
Feb 2025
Committee Review
Floor Vote
Governor
Introduced Feb 6, 2025
Last action Feb 6, 2025
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
1
Feb 6, 2025
Committee
Referred to Health and Human Services
upper
Feb 6, 2025
Introduced
Introduction and first reading
upper
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Jim Carlson
DDemocratic-Farmer-Labor
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