An Act to improve sickle cell care

This bill requires health insurers to cover standard fertility preservation services (like egg or sperm freezing) for people with sickle cell disease who face infertility risks from their condition, matching coverage for other pregnancy-related procedures. It also establishes a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, including patient advocates, medical experts, educators, and community representatives. The committee will develop statewide care standards, create educational materials for patients and providers, identify funding sources, and oversee services like genetic counseling and school-based support. These provisions directly affect sickle cell disease patients, particularly those needing fertility preservation, and aim to improve coordinated care across health, education, and social services. The bill mandates coverage through existing insurance mechanisms and directs the committee to address racial health disparities in sickle cell care.