An Act to improve outcomes for individuals with Parkinson’s disease

This bill establishes a Parkinson's disease registry within the Massachusetts Department of Public Health to track the number of people living with the condition and related disorders. It creates an advisory committee made up of medical professionals, researchers, and individuals diagnosed with the disease to guide how data is collected, protected, and shared. Under the new rules, all patients diagnosed with Parkinson's or related conditions must be notified about the registry, but participation is voluntary; those who do not wish to join can opt out, and only their diagnosis will be recorded without further personal details. The department is authorized to report these cases to the state and may contract with others to manage the program and ensure data privacy.