An Act relative to consumer health data
This bill creates a new Consumer Health Data Act in Massachusetts to protect individuals' personal health information from unauthorized collection and use. It defines "Consumer Health Data" broadly to include medical records, genetic information, biometric data, and even health-related data inferred from other sources like purchase history. The law requires companies to obtain clear, written, opt-in consent from consumers before collecting or sharing this data, explicitly banning consent obtained through pre-checked boxes or general terms of service agreements. Additionally, the bill establishes strict rules for how data can be shared with affiliates and excludes certain categories like employment records and approved scientific research from these protections.
Bill status
passed both
4 of 5 stages cleared
Introduction
Feb 2023
Committee Review
Feb 2023
Senate Passage
Jul 2024
House Passage
Feb 2023
Governor
Introduced Feb 16, 2023
Last action Aug 5, 2024
Floor votes
How they voted
This bill passed the Senate. No roll call record of that vote is available.
Full legislative history
Actions timeline
Total actions
6
Key actions
2
Committee
1
Jul 8, 2024
Upper · Passed
Senate concurred
upper
Feb 16, 2023
Lower · Passed
House concurred
lower
Feb 16, 2023
Committee
Referred to the committee on Consumer Protection and Professional Licensure
upper
1 primary · 6 co-sponsors
Sponsors
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