An Act to improve outcomes for individuals with Parkinson’s disease

This bill establishes a Parkinson's disease registry within the Massachusetts Department of Public Health to track the number of people living with the condition and related disorders. It creates an advisory committee made up of medical experts, researchers, and individuals diagnosed with Parkinson's to guide how data is collected, protected, and shared. Under the new rules, all patients diagnosed with the disease must be reported to the state, but those who do not wish to participate can opt out, and only their basic diagnosis will be recorded without further personal details. The legislation aims to improve outcomes by providing better data for planning treatment, educating healthcare providers, and supporting research efforts.