HR 401 Louisiana House · 2026 Regular Session

CONGRESS: Memorializes the United States Congress to work towards a cure for Sanfilippo Syndrome

This bill directs the United States Congress to collaborate on finding a cure for Sanfilippo Syndrome, a rare genetic disorder affecting children. The resolution calls for legislative action and support rather than establishing new funding or regulatory requirements. It was recently passed by the House of Representatives with unanimous support. The primary effect is a formal statement of intent to address this specific medical condition.
Bill status passed 3 of 5 stages cleared
Introduction
May 2026
Committee Review
House Passage
Jun 2026
Senate Passage
Governor
Introduced May 31, 2026 Last action Jun 3, 2026
Maddy AI version diff · 1 comparison

What changed between versions

HR401 Original HR401 Enrolled · 3 edits · Jun 1, 2026
MINOR
The bill was finalized for enrollment, adding the names of additional co-sponsors and removing the original draft number. The substantive policy content, including the memorial to Congress for a cure for Sanfilippo Syndrome and the specific details regarding the Guillory family, remains unchanged.
Scope change
The scope of the bill's subject matter and applicability did not change; only the procedural status and list of sponsors were updated.
TECHNICAL

Added the names of additional Representatives (Billings, Boudreaux, Butler, Chassion, Coates, Egan, Knox, Miller, Spell, and Taylor) to the list of co-sponsors.

Removed the original bill identifier 'HLS 26RS-6292' and replaced it with the final enrolled status.

Updated the document title from 'ORIGINAL' to 'ENROLLED' to reflect the bill's final passage.

Floor votes · House Jun 1, 2026

How they voted

910
Passed · 14 other
Total votes 105
Jun 1, 2026
D Democratic33
29 Yea 4
87% Yea
R Republican72
62 Yea 10
86% Yea
Vote distribution
All Yea All Nay Mixed No data
Full legislative history

Actions timeline

Total actions
5
Key actions
1
Committee
0
Jun 1, 2026
Lower · Passed
Read by title, amended, roll called, yeas 89, nays 0. The resolution was adopted.
lower
1 primary · 13 co-sponsors

Sponsors