DISEASE CONTROL: Requests the Louisiana Department of Health to meet certain benchmarks toward establishing the Sickle Cell Disease Registry.

This Senate Resolution urges the Louisiana Department of Health to take specific steps to launch the Sickle Cell Disease Registry, a database designed to track patients with sickle cell disease and connect them with care. The bill sets a timeline requiring the department to sign data-sharing agreements with healthcare providers by July 2024 and begin creating administrative rules by August 2024. It also mandates that the department clean existing data to remove duplicates and assess its quality before fully launching the registry by January 2025. This measure directly affects state health officials and healthcare providers who will need to share patient information to build a comprehensive list of individuals with the condition.