HEALTH/SICKLE CELL ANEM: Directs the Louisiana Department of Health to meet certain benchmarks to launch the Sickle Cell Disease Registry

This resolution directs the Louisiana Department of Health to establish and launch the Sickle Cell Disease Registry by December 24, 2024, to track patients with this inherited blood disorder. The state agency must sign agreements with healthcare providers and community groups by July 1, 2024, to share patient contact information and begin cleaning existing data to remove duplicates. Additionally, the department is required to draft administrative rules and report progress to state committees at specific intervals throughout 2024. These steps aim to create a centralized database that connects individuals with sickle cell disease to necessary care and support services.