Consumer genetic testing providers.
Summary
Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.
Bill status
passed
3 of 5 stages cleared
Introduction
Jan 2024
Committee Review
Jan 2024
Senate Passage
Jan 2024
House Passage
Governor
Introduced Jan 16, 2024
Last action Feb 6, 2024
Floor votes · Senate Jan 30, 2024
How they voted
48–0
Passed
Total votes 48
Jan 30, 2024
D
Democratic9
100% Yea
R
Republican39
100% Yea
Vote distribution
All Yea
All Nay
Mixed
No data
Full legislative history
Actions timeline
Total actions
15
Key actions
3
Committee
1
Amendments
1
Jan 30, 2024
Upper · Passed
Third reading: passed; Roll Call 70: yeas 49, nays 0
upper
Jan 29, 2024
Upper · Passed
Amendment #1 (Hunley) prevailed; voice vote
upper
Jan 25, 2024
Upper · Passed
Committee report: amend do pass, adopted
upper
4 primary · 13 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Andrea Hunley
DDemocratic
P
Brian Buchanan
RRepublican
P
Kyle Pierce
RRepublican
P
Tyler Johnson
RRepublican
Co
Beau Baird
RRepublican
Co
Cherrish Pryor
DDemocratic
Co
DV
Dave Vinzant
DDemocratic
Co
David Niezgodski
DDemocratic
Co
Eric Koch
RRepublican
Co
Fady Qaddoura
DDemocratic
Co
Greg Taylor
DDemocratic
Co
J.D. Ford
DDemocratic
Co
Kyle Miller
DDemocratic
Co
Lonnie Randolph
DDemocratic
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