Rare disease advisory council.
Summary
Defines "rare disease" as a disease that affects fewer than 200,000 people in the United States. Establishes a rare disease advisory council (council). Provides for appointment of the members of the council. Requires the council to fulfill certain duties for the benefit of patients with rare diseases. Requires the council to submit an annual report to the governor and the members of the senate health and provider services committee and the house public health committee.
Bill status
in committee
1 of 4 stages cleared
Introduction
Jan 2023
Committee Review
Floor Vote
Governor
Introduced Jan 19, 2023
Last action Jan 19, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
2
Key actions
0
Committee
0
1 primary · 0 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Dan Dernulc
RRepublican
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