INS-HEALTH CARE/RARE CONDITION
Summary
Amends the Illinois Insurance Code to require an insurance policy to provide coverage for medically necessary treatments for genetic, rare, unknown or unnamed, and unique conditions, including Ehlers-Danlos syndrome and altered drug metabolism. Provides that an insurance policy that provides coverage for prescription drugs shall include coverage for opioid alternatives, coverage for medicines included in the Model List of Essential Medicines published by the World Health Organization, and coverage for custom-made medications and medical food. Provides that an insurance policy that limits the quantity of a medication in accordance with applicable State and federal law shall not require pre-approval for the treatment of patients with rare metabolism conditions that may need a higher dose of medication than what is otherwise allowed within a time frame or prescription schedule. Provides that the burden of proving that treatment is medically necessary shall not lie with the insured in cases of rejections for filing claims, preauthorization requests, and appeals related to coverage required under the Section.
Bill status
failed
1 of 4 stages cleared
Introduction
Feb 2021
Committee Review
Floor Vote
Governor
Introduced Feb 19, 2021
Last action Jan 10, 2023
Floor votes
How they voted
No floor votes recorded yet.
Full legislative history
Actions timeline
Total actions
8
Key actions
0
Committee
3
Mar 27, 2021
Committee
Rule 19(a) / Re-referred to Rules Committee
lower
Mar 16, 2021
Committee
Assigned to Insurance Committee
lower
Feb 22, 2021
Committee
Referred to Rules Committee
lower
1 primary · 2 co-sponsors
Sponsors
Role
Legislator
Party
State
District
P
Lindsey LaPointe
DDemocratic
Co
Kelly Cassidy
DDemocratic
Co
Nick Smith
DDemocratic
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